Tag Archives: inspiration

Yes, dreams do come true…

Many of us have had conversations in our childhood about things we want to accomplish someday. For me one of those things was to write a book on my life. I think the idea came to me in middle school . This would be a conversation that I would continue to have with friends and family for many years. Then about three years I started actually writing a book on my life. Then on Sunday I finished! I self published my book after only talking about doing it for about twenty years.

“The Impossible Only Takes a Little Longer: One Woman’s Story of Determination” is now available on Create Space and on Amazon. Currently it is only available in paperback. I am working on formatting it into e-book on Kindle.

The book has stories, poems and pictures that brings the reader through challenges and success of my life. If you’re looking for a story that will inspire you or someone else in your life pick this book up. As I have been told my friends before “I’m just being little me. I never tried to be inspiring.” That was when they responded, “That’s why you are so inspiring Sheila. Keep being you!”. SheilaBookCover_30Aug2014_final

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Change

Change is in us

change is around us

change is because of us

 

In us we hold the power

the intent of our change is within

we only need to let it loose

 

Around us power is everywhere

our intent impacts the change

we only need to visualize it

 

Our power makes the change

where do you see yourself going

let it loose, visualize it, and it happens

 

The change is starting

the change can be small or large

the change can pass you by

 

Look within yourself

open the doors to change

close the doors of fear

 

Harness the power within

Harness the power around

Harness the power because of us

 

The energy is growing hold it

mold the energy with intent

go forward with it

 

Change, power, energy

is in us

is around us

is because of us

 

Labyrinth

Across the field

Feel the call

See its presence

Anticipate the mystery

Approach

Listen to the guidance

Cleanse through the sage

Ready with the chimes

Enter

Step slowly, quickly or stop

Go deep, go deeper

Find the inner core

Be aware

Mysteries are within

Baggage is cut loose

Minds are cleared open

The core

Center bring stillness

Awareness comes; confusion passes

Journey out begins

Exiting

Time and space has changed

Mind and spirit are intertwined

Trance is here

Leaving

Steps are quick or slow

Emerge from the depths

Release the trance

Clearing

Distance offers grounding

Friends bring experience

Laughter fills the air

My World

I navigate my world unlike you

And yet you watch me with intent

For years I have been baffled by this

Why are you interested in my world?

I see the world as a puzzle

Each task I work out in my mind before

I watch you to see how I should do it differently

A two-step task for you; is six or eight for me

Is your watch of judgement or of wonder?

Your eyes portray a mixture of both

Why does my world hold your interest?

Is the judgement due to fear or ignorance

You hold no understanding and yet you want to

And so you assume the truth

You hold silent when you could speak your questions

That silence sees my world as difficult and unpleasant

When it is simple and beautiful

The wonder you hold keeps my curiosity

Your excitement grows as you watch my steps

Silence fills the room; Did I miss something

No you are merely watching me

Your mind is full of questions and they are wonderful

My answers give truth to the puzzle of my life

No longer must you wonder how; for I am here to show and tell

I saw myself in my own world

And I watched with wonder

How interesting I found the tasks

The puzzle in my mind; I now can see

I watch with intent, what happens next

How interesting it is, I have watched you for years but not myself

I navigate my world unlike you

You watch me with intent

Now I understand this

My world is different, full of surprise and adventure

Why wouldn’t you want to come and see!

Inspiration

I am an inspiration

Well that is what I have been told

 

Right from the start I defied the world

Why do you ask because I wanted to survive

And not just survive but truly live

 

I am an inspiration

I took the world on and I did it with love, smiles and giggles

I took on every challenge like it was puzzle and I wanted to see the final picture

 

You are an inspiration

You took on the world with your words and actions as I watched

 

You were there at the start of everything

Cheering me on and providing strength, confidence and love

 

You are an inspiration

You gave me everything unconditionally and never looked back

 

You are the inspirational ones

I am merely living by your example

 

 

 

Meeting others with TARs

For the first 20 years of my life I knew of only three other people with TARs, I was told one boy was six months younger, the other boy was six months older and then there was the young man who was 18 years older than me. I have one memory of speaking with Andy, the young man, on the phone I remember him telling me that he drove a car and flew a plane. My parents had met him once at Shriner’s Hospital when I was only a few years old. The brief moments of connect that Andy had with my family and I had more impact then he may of ever known. First he gave my parents hope that I would become independent some day. He was also living proof that you could grow up with TARs and be healthy and happy. I also recently learned that his dressing sticks gave my parents the idea of creating my hook a.k.a. dress stick. Mine would develop into something much different but it gave me the independence that he had in his life. Our conversation on the phone made me realize that I was not alone in the world. Someone else was out there that understood what I was going through in my life.  While in college I meet a woman with TARs for the first time and I learned that there was long arm TARs and short arm TARs. Unfortunately, our only common thread was TARs and did not become very close friends in the end.

A number of years later Shriner’s  Hospital took me up on my offer that if there was anyway that I could help please call me. There was a family with a two-year old boy with short arm TARs and they wanted to talk with another with TARs or others who understood TARs a bit more than them. I told the hospital that I would be happy to talk with them please give them my number. I waited for their call. Our first call lasted hours. She had so many questions about how I had learned to do things, how my parent dealt with having a child with a disability, and what was my medical history was like. It was exciting to think that my own life experience could help this family in a real positive way. I realized later that I was the hope for this family that Andy had been for mine. We had a number of conversations after that and then we decided to meet.

Meeting young Michael was exciting and difficult all at the same time. When they all first arrived Michael was brought into my apartment and they ran back to car for a moment. I remember seeing him sitting there on the floor and for a brief moment my childhood flashed in front of my eyes I was sad for him because I knew what kinds of physical and emotional pain was yet to come. Quickly, every else was in the house and the fun began. I got to watch Michael do things in his own way which was amazing to watch. It gave me a peek into what my childhood may have been like from the other side. This new friendship gave me a new understanding to what my parent did for me and how hard it must have been for them. Over the last few years we have continued to be friends talking on the phone and visiting. Michael has had surgeries now that give him the hope of walking on his own some day.

The internet has been an amazing tools to interact with other people who have TARs.  At this point in my life I have met, spoken to, and emailed many people with TARs and some of their family.  My story is online and it has begun to give hope to more than one family. I have had the chance to met others and support them in their independence. That story is for another day.

Easter Seals- Youth Leadership Conference

An invitation to the Easters Seals Walkathon connected me to their Youth Leadership Conference. I had an audience of about 40 youth with physical disabilities and my topic for the day was Self Advocacy. Presenting to this group was amazing they had hope, energy, and inspiration. I was able to connect with them on many different levels. Most importantly I was able to show them through my life experiences that they could do anything that they put their minds.

Through an evaluation I asked the students what did you learn from this presentation?

“I learned to keep going regardless of what anyone says” (John 20)

“That it doesn’t matter what your disability is you can do anything you put your mind too” (Samantha 17)

“To stand up for your rights (against discrimination) no matter what” (Dominic 17)

“I will remember to fight and never let anyone walk over me” (Melissa 17)

I will remember how excited and inactive the youth were throughout the presentation. I could tell right away that I was making a difference in their lives. One student told me that they will most remember :my positive outlook, my never give up attitude and how it was contagious throughout the whole audience”. (Gabe 23)   

Interesting discussion

While having dinner with the youth I was asked how do you deal with being stared at all the time? I began in explaining that it depends on if it is a child or adult and what I might perceive their age to be. Then there is factoring how that staring makes me feel in the moment. The young child maybe 7 and younger is usually just curious and is trying to understand what is different about you. I will often will smile, wave or say hello. That is usually enough to have the child to see you as a person and they move on.  After the age of 7 the staring is usually is cruel and they are just making fun of you. The thing to remember is that they are the ones who have the issue not you. For some reason they feel that they have the right to put their issues on you and making fun of you is good. Well, it is good until you call them on it. I will walk up to people and tell to stop staring, tell them what they are doing is wrong, ask them if they would like to be stared at or just stare back. When you do these things it changes the power in the situation you gain your power and they become uncomfortable.  When I was a kid I would fun with the kids when they laughed at me and they stopped pretty quick and I use to tell adults that I was sorry they had such a small brain.